My Kidney Transplant Experience
First, I want to inform you that this blog is about my personal experience with dialysis and getting a kidney transplant. I really wanted to write about this so, that it might possibly help someone that is in the same situation. If you have recently been diagnosed with kidney failure and start dialysis soon, I don't mean to scare you on the journey that lays ahead. I just want to be honest about some of the things you might or you will experience. However, everyone is different so, your experience might be different as well.
A brief history about me
I am a 23-year-old college student studying education.
I grew up generally healthy, or so I thought. So the day I went to the doctor for an annual check up my pressure was really high and I was sent to the hospital for observations. As, I got to the hospital I was put in ICU and after many tests I was told that both of my kidneys were functioning less than 5% percent. The news was a major
shock to my life. I was a 16-year-old who went to the doctor for a checkup,
one-day snow sledding with my family and the next getting a tube inserted to my
chest. For the next few years I felt like a science experiment, tests after
tests, scares after scares, bigger needles in my arm every visit. Finally, at
18 years old my mom got the call that there was a match for me and that I would be
receiving my lifesaving transplant.
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A random piece of art that I created sums me up |
Dialysis
My personal dialysis schedule was going to the center
3 times a week, for 4 hours. Dialysis itself was 4 hours, sometimes I waited at
the center for one or two extra hours because the waiting line was so long.
Honestly, I am some kind of a weird freak who enjoys needles so dialysis could
have been worse for me. Still I got to the bigger sizes of the needles
which were the width of a coffee stir, or the width of a headphone socket as before that I had a catheter in my chest. The catheter lead to my heart, and
it had two smaller tubes that were length and width of crayons that stuck out
of my chest. It was so ugly. When showing I had to cover the catheter to keep it from getting it infected with a gauze and medial tape
covered it up. It was so ugly, there was no way I felt pretty or normal during
this time period. When people saw the bandage and asked what happened I told
them I was shot because I thought it was funny, people actually believed me so
I egged them on. The tubes are gone and I no longer have to undergo dialyses.
Don’t get me wrong, I’m grateful I’m alive but honestly I was stuck with the
ugliest arm ever to this day and I hate it but the good news for it is a nurse told me recently we can have it flattened, yay! I still have to ask my doctor about this, stay tuned and ill let you know what she has to say about this.
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Myself and my dialysis wacky arm |
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(above picture not my picture, using so you can see size of needles) |
How to treat someone with kidney failure?
If you are the one with sucky kidneys surround
yourself with friends and laugh as much as possible. That is what got me though
everything. A friend once told me “Tori, I think you are faking it. Your
awesome, your not sick. So don’t your dare be sad. Just smile okay? Because you
are going to be okay”. His words were simple, but honestly they meant
everything because he didn’t treat me like I was dying. Don’t give these people
with kidney failure your pity because they don’t want it. What they want is to
feel normal. So please make them smile and laugh whenever you can, distract
them from the fact that they have dialysis the next day.
After the surgery
During the time I needed a transplant there were no
transplant services in El Paso TX. So when I got the call that they found a
match me and my mother were flown to San Antonio TX to receive my transplant. I
was happy about getting a transplant. Then again, I would be lying if I didn’t mention
it was one of the hardest moments I ever had to deal with. I thought that
everything would go back to normal as soon as I received the kidney. I had to
go through so many changes in such a short time. I was fairly thin weighing in
at about 105lbs. However, within a week and a half I had gained 40 to 50
pounds. This was due to the amount of water I was required to drink. It was
also due to the new medications I was taking. The medication made me extremely
hungry and emotional, I was eating 5 times what I was used to. The medication
made me grow hair on my face and arms. I had to take about 15 different
medications, and I just didn’t feel normal. This was traumatizing for a
self-conscious 18-year-old girl.
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Just a few weeks after my kidney transplant. |
Life after kidney transplant
Looking back at it I’m embarrassed at how I reacted
back then. I probably also sound really spoiled for complaining about these
issues. Believe me I was happy to be given this opportunity. I wasn’t told much
about the young lady whose organ I received. I just know she was my age, and
the person who received her other kidney was a cute 5-year-old boy. I think about
the girl who gave me her organ often. My biggest mission in life is to make
sure it doesn’t go to waste. I try to help everyone I can, form the homeless,
to the kids I work with, to being the best person I can be. I feel like it's my
duty to enjoy life and help people with this new shot at life I received. I
wrote about the emotional struggles and physical change because although it is
usual for younger people to have kidney failure, it does happen. I looked for a
couple blogs on the subject and found out there isn’t much on the subject. I
know when I was on dialysis I wondered what life after a kidney transplant
would be like. And this is why I wrote this. I wanted to let young ladies who
maybe going through the same thing know that even though the process is scary,
it gets better. I lost all the weight in a week or two, the hair on face and
arms went away too although I still have to take medication for life it's only
3 pills, life has gotten so much better. After your kidney transplant your quality
of life will be so much better. For all of you who are awaiting an organ
transplant, I am so excited by all of the things you are going to be able to do.
You will be able to travel and not worry about dialysis, you will be able to
eat a pickle and drink as much water as you’d like. You are going to be able to
live the life you wanted once you get that transplant, so please don’t give up!
You are going to make it, don’t be sad, please smile because you are going to
be okay.
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Went through dialysis for 3 years of high school, senior year received my transplant and graduated the same year.
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